Community Links and Resources:
ADA – Family Link - Connects you and other families of kids with diabetes
http://www.diabetes.org/living-with-diabetes/connect-with-others/family-link/
- Mentors: Talk to others who’ve been there and understand how you’re feeling
- Events: Over 50 local communities, opportunities to learn more about diabetes
while meeting other families of children with diabetes
- Diabetes Camp: Finding, registering for, learning about and supporting camp
- Experts: Information from world renowned experts, recent research,
diabetes milestones, hot topics, research database
- Diabetes Care at School: Safe at School campaign, special considerations,
resolving challenges, school staff training, written care plans, classroom
lessons, team effort, legal protection, resources for care at school,
daycare, camps and recreational programs
- Message boards: Various threads, login and create your own! Create a custom profile,
put together a river of your favorite news & blog feeds, speak on topics you care
about, upload and share pictures, comment, tag, blog or email your thoughts
ADA – Parents and Kids - Living with diabetes, providing
information and resources to help every child and every family adjust to life with diabetes
http://www.diabetes.org/living-with-diabetes/parents-and-kids/
- Everyday life: Learning to adjust – supplies needed, managing stress,
summer time changes, every day routines, questions to ask your doctor
- Family Communication: Finding the right balance between caring and hovering,
communicating with your child, working together as a parental team
- Diabetes Care at School: Safe at School campaign, special considerations,
resolving challenges, school staff training, written care plans, classroom lessons,
team effort, legal protection, resources for care at school, daycare, camps and
recreational programs
- Planet D: A website just for kids and teens with diabetes
- Managing Diabetes: Diabetes basics, common terms, tips, diabetes myths, snacks
ADA - Planet D - Your place to explore more about diabetes,
discover new things about yourself, and connect with new friends
http://www.diabetes.org/living-with-diabetes/parents-and-kids/planet-d/
- New to Diabetes: All About Diabetes – everything you need to know with a new diagnosis,
sick days, exercising, etc; My ADA – Family Link, events, etc; FAQs
- D-fine It!: Definitions of diabetes-related words
- D-People: People with diabetes – famous and people just like you
- Message Board: Various threads, login and create your own! Create a
custom profile, put together a river of your favorite news & blog feeds, speak on
topics you care about, upload and share pictures, comment, tag, blog or email your
thoughts
- National Youth Advocate: Open to young people 14-17 years old with type 1 or
type 2 diabetes willing to speak publically at various events throughout the year who
works to improve the lives of people living with diabetes
- Find a Camp: find a camp supported by the American Diabetes Association
in your area
ADA – Support for your Family - Resources to help you and your family
http://www.diabetes.org/living-with-diabetes/parents-and-kids/support-for-your-family.html
- Mentoring: Parent Mentor, Planet D, Parents’ message boards, events
- Center for information and community support: Representatives from the ADA
are your personal guides to information on diabetes, ADA programs and events and assist
you in connecting you with appropriate local resources in your area
- Expo: - Events that brings all things related to diabetes, search for one
in your area
- Stay informed: Magazines and e-newsletters
Children with Diabetes – The online community for kids, families
and adults with diabetes
http://www.childrenwithdiabetes.com/
- Chat: Chat rooms, chat resources, scheduled chats
- Forums: Threads on various topics relating to diabetes and your life
- School: Diabetes a school – links to everything you need to know for your
child as s/he goes throughout the school years
- Whats New: Newest information and links from the sections
above and in the world of diabetes
- People: Adults with diabetes, videos, poetry & art, mailing
lists, parents, grandparents, surveys, etc
- Living With Diabetes: Personalized web pages for you and other
children with diabetes
- Headlines: Diabetes in the news, links to recent articles and web pages
- Family Support Network: Database of parents, children, teens, adults, relatives
and friends willing to exchange mail or e-mail about diabetes, babysitting, helping out
college kids and meet newly diagnosed families
- Clinic: Diabetes care suggestions, learn more about CGM
- Support: Sign-up for e-mail newsletters, mailing lists,
share recipes, support groups, share experiences
- Diabetes Humor: Humorous jokes, tidbits and stories
- Books: books for children with diabetes, weekly featured books
- Ask the Diabetes Team: Read answers to commonly asked questions, uncommonly
asked questions, or your own questions
- Diabetes Dictionary: Definitions of words you will run across in your life
with diabetes
- Studies and Surveys: TrialNet, DiaPrevent, DEFEND and other studies, ongoing and new,
happening in the world of diabetes research
Children’s Mercy Hospital Diabetes Support Group - Quarterly
support groups
http://cmh.edu/content/view.aspx?id=1386
- Free support groups four times a year
- Open to anyone who cares for a child with type 1 diabetes; children with type 1 diabetes and
siblings are also encouraged to attend
- For questions, contact one of the diabetes social workers
- general line (816.234.1660)
- Lara Simon (Green/Silver - 816.234.3882)
- Heather Feingold (Red/Turquoise - 816.802.1251)
- RSVP the week prior
- Dinner provided, 6:00 – 7:00 PM
- 2011 Dates:
- January 31st @ Main Children’s Mercy Hospital (Downtown KCMO)
- April 4th @ Children’s Mercy South (Overland Park, KS)
- August 22nd @ Main Children’s Mercy Hospital (Downtown KCMO)
- November 7th @ Children’s Mercy South (Overland Park, KS)
Diabetes Monitor - Information, education and support for people
with diabetes with Various articles about diabetes, diabetes and children and diabetes and adolescents
http://www.diabetesmonitor.com/diabetes-in-children/
- Featured Articles:
- Type 1 Diabetes and Parenting
- Type 1 Diabetes In Children
- Training A Diabetes Care Team
- Why Kids With Type 1 Diabetes Need To Keep Blood Sugar Under Control
- Type 1 Diabetes Diagnosis Spotting Symptoms Getting Help And Moving On
- Its Important To Keep Up With Your Child’s Blood Sugar Levels
- Type 1 Diabetes In Children
- Could An Artificial Pancreas Be The Future Of Type 1 Diabetes Treatment
- 5 Tips To Care For A Child With Type 1 Diabetes
- Diabetes In Children and Adolescents Article List:
- Overview
- Fact Sheet
- Diabetes And American Children CDC Efforts
- Managing Diabetes In Students
- Diabetes In School links
- Maturity Onset Diabetes Of The Young
- Dealing With Juvenile Diabetes As A Teen
- Parents’ Questions About Their Child’s Diabetes
- Resource Directory
- Information For Teens With Diabetes
- Tips For Teens With Diabetes
- Teens Coping With Diabetes
Insulin Pumpers - Support and information for adults and children
with diabetes
http://www.insulin-pumpers.org/
- Children’s page – links to resources, stories, Q&As, research, etc
- Facts about diabetes
- Insulin Pump forums and chat rooms
- Diabetes and Pumper’s HOW TO
- Recipes and Books
- Links to the various insulin delivery systems, infusion sets, etc
JDRF Kids Online - Website for kids with diabetes and their
friends and family
http://kids.jdrf.org/
- New To Diabetes: answers to your questions about diabetes, and help handling
the changes it brings to your life – information and links to diabetes information
(what it is, why, Q&As, for friends & family, education, research being done)
- Your Life (With Diabetes): anything you could ask, easily structured and read –
coping & connecting with others (basic diabetes information – monitoring, taking
insulin, eating, exercising, dealing with feelings, complications, insulin delivery
methods; at home; at school; with your friends; on the go; on special occasions)
- The Search for a Cure: latest from scientists who are working on a cure and
ways to make lifewithdiabetes easier
- Make a Difference: inspiring examples of how ordinary kids with diabetes are
making a difference in the world, and how you can, too. Volunteer links, government
involvement, fundraising, JDRF events
- Your Stuff: Idea zone (share artwork & ideas), Kids Say (blogs & threads),
Pen Pals, Real Talk (stories of other kids with diabetes)
Juvenation - A type 1 diabetes community created by JDRF for people
with diabetes of all ages
http://juvenation.org/user/cs_jdrf_home/default.aspx
- Click “Join Now” – fill out information. Make profile on homepage, add picture.
- Groups: join or create your own - CGM, college life, artificial pancreas project,
diet/nutrition, complications, men only, siblings, teens, etc
- Resources: Adult Type 1 Toolkit, People in the Know (community of experts), Educating Others (how to)
- Forums: various threads, create your own or join a conversation
- Media: videos
- Blogs: various blogs, or create your own
Joslin Diabetes Center - The world’s preeminent diabetes research
and clinical care organization
http://www.joslin.org/info/childhood_diabetes.html
- About Type 1 DM and children: What it is, warning signs, information for newly
diagnosed families, need-to-know information, research
- Living with Diabetes: Holiday tips, tips on managing diabetes, what life is like
for a kid with diabetes
- The Emotional Side of Diabetes and Children: Understanding your child’s feelings,
how to talk to your child about diabetes, eating disorders/Diabulimia
- Diabetes at school: School lunch and diabetes meal planning, links to other websites
- Summer camp: Managing diabetes at non-diabetic camps, choosing a summer camp
- Going to College with diabetes: Explaining diabetes to roommates, caring for
diabetes away from home
Kids Health Diabetes Center – Information you can trust about health,
behavior and development from before birth through the teen years
http://kidshealth.org/parent/centers/diabetes_center.html
- Diabetes Basics: Importance of control, facts and myths, dealing with feelings, endocrine system, hyperglycemia and DKA, hypoglycemia, kidneys and urinary tract, long-term complications, metabolic syndrome, metabolism, overweight and obesity, treating type 1 DM, weight and DM
- Medications & Monitoring: Blood glucose record, helping kids deal with injections and blood tests, how to give an insulin injection, medicines for DM, monitoring blood sugar
- Diet & Nutrition: 3-day food diary, recipes, breakfast on the go, carbohydrates and DM, sugar and your child, various recipes
- Living With Diabetes: Importance of control, dealing with feelings, when to call the doctor, giving teens a voice in health care decisions, hyperglycemia and DKA, hypoglycemia, kids and diabetes – a personal story, managing your child’s diabetes on sick days, school and diabetes, sports/exercise and diabetes, talking to your child about diabetes, your child’s diabetes health care team
- Tools: 3-day food diary, blood glucose record
- Q&As: Common questions and answers
- Words to Know: Definitions of diabetes-related words
- En espanol: Informacion en Espanol
- For Teens
- Diabetes Basics: Importance of control, true and false, endocrine system, long-term complications of DM, inheritance, other diseases associated with type 1, what it is, weight and diabetes, when blood sugar is too high
- Treatment & Prevention: Blood glucose record, importance of control, when to call the doctor, handling diabetes when you’re sick, how to fill a prescription, how to give an insulin injection, keeping track of your blood sugar, medicines for diabetes, metabolic syndrome, refilling a prescription, school and diabetes, sports/exercise and diabetes, how it’s treated, the difference between a treatment and a cure, when blood sugar is too high or low
- Dealing With Feelings: Dealing with a health condition, dealing with feelings, how to help a friend with DM, school and diabetes, when a sibling is seriously ill
- Diagnostic Tests: Blood and urine tests
- Body Basics: Metabolic syndrome, metabolism, other diseases associated with type 1, being overweight is a health problem
- Personal Stories: Personal story of a teen with diabetes
- Diabetes & Nutrition: 3-day food dairy, about recipes for teens with diabetes, carbohydrates and diabetes, various recipes
- Words to Know: Definitions of diabetes-related words
- En espanol: Informacion en Espanol
Kids With Courage - To help children face numerous challenges and
overcome adversity through discipline, perseverance and hard work
http://www.kidswithcourage.org/
- About: Mission, about the Founder, Board/Staff members, FAQ’s
- About Type 1 Diabetes: Who it affects, what it is, about insulin and
management, cause, warning signs and symptoms, complications, misconceptions
- Team Courage Kids: The foundation’s purposes and programs
- Supporters: Volunteers, Business/Corporate
- Courage Stories: Inspiring Thoughts, Hall of Heroes
- Ways to Help: How to support the foundation and diabetes, giving opportunities
- News & Events: What’s going on with KCW and the community
- Contact us: By mail, e-mail and phone
Safe Sittings - Diabetes babysitting service
http://www.safesittings.com/about.php
- Help to find someone in your area who has Type 1 Diabetes and the skills and knowledge necessary to help keep your children safe
- If you don't see something in your area, be the first to sign up and start the action there
Shawnee Mission Medical Center – Diabetes Center - Diabetes support through SMMC
http://www.shawneemission.org/health-services/kansas-city-diabetes-center.html
- The latest medical information regarding diabetes taught by CDEs
- Comprehensive education program consisting of an introductory visit with a
Diabetes Nurse Educator, followed by three two-hour classes
- Classes available Tuesday evenings 5:30-7:30 and Wednesday mornings 10:00-12:00
- For information, call 913.676.2548 or the ASK-A-NURSE Resource Center at 913.676.7777
Shawnee Mission Medical Center – “Living Well With Diabetes” - Free diabetes support group, meets monthly
http://www.shawneemission.org/health-services/diabetes-support-group.html
- Meets 1st Thursday of each month, 11:00-12:00 PM
- Various subjects relating to diabetes
- Learn new information, renew your energy, ask questions and get answers you
can trust and share your experiences with others
- To sign up, call the ASK-A-Nurse Resource Center at 913.676.7777
Resources in Spanish:
Diabetes Juvenil - Informacion en Espanol
http://www.diabetesjuvenil.com/
ADA - Informacion en Espanol
http://www.diabetes.org/espanol/
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